It's been quite a while I know but I've had many things happen lately, though mostly all good. I got married July 10th to my loving husband! It was done at the court house and the ceremony was short and sweet. Just the way I like things since, as the title of the post suggests, chemo brain is really starting to affect my life. That's part of the reason I've been so absent lately. I hope you all didn't think I was dead!!! :D I just simply can't remember to sit down and write anymore. And when I do sit down the words just escape my mind like a flock of startled birds. It's frustrating and sometimes downright scary that I can't remember things.
One reason this is so upsetting to me is that I have a degree in English literature and writing is my thing. It brings me joy to craft words, literary structure, exercise poetic license, and when I can't I usually throw the pen and pad down and walk away. Not being able to do the one thing I love to is leading to a slight depression that I'm trying to break out of. I'd also like to start a YouTube channel talking about my experience with CML but I need a better web cam first, and when I do get one how am I going to speak when I can't even write a coherent script? I guess it's going to be much like my blog and website, a jumbled mess of disparate things flimsily glued together somehow.
This is a great post that I found from another soul with CML who has decided to start a blog. Check out:
http://www.leukemiasurvivor.co/2011/06/chemo-brain-just-call-me-scarlett.html?showComment=1375030430414#c5836440382368867525
For whatever reason shopping with chemo brain is a trying experience and I too have quite similar experiences when at the store as that post describes. I wander around knowing I'm there for a reason but it just won't break through. Or I stare at the stuff that's for sale with no real comprehension of what I'm looking at. Just recently I went toy shopping for a friend's daughter birthday that's coming up and everything looked the same to me. I just couldn't tell the difference between the (obvious to everyone else) assortment of toys. Finally my husband stepped in when he saw me staring vacantly and saved the day. I do remember telling the doctor that when I first started taking Sprycel that I felt confused and couldn't remember jack diddly, but now it's quite obvious to me that this side effect is probably not going away on it's own. And, unfortunately, there's not much that can be done about it. So please be patient with us CML survivors as we muddle through our days trying to figure out exactly what it is we were supposed to do in the first place. That's it for now. Over and out!
One reason this is so upsetting to me is that I have a degree in English literature and writing is my thing. It brings me joy to craft words, literary structure, exercise poetic license, and when I can't I usually throw the pen and pad down and walk away. Not being able to do the one thing I love to is leading to a slight depression that I'm trying to break out of. I'd also like to start a YouTube channel talking about my experience with CML but I need a better web cam first, and when I do get one how am I going to speak when I can't even write a coherent script? I guess it's going to be much like my blog and website, a jumbled mess of disparate things flimsily glued together somehow.
This is a great post that I found from another soul with CML who has decided to start a blog. Check out:
http://www.leukemiasurvivor.co/2011/06/chemo-brain-just-call-me-scarlett.html?showComment=1375030430414#c5836440382368867525
For whatever reason shopping with chemo brain is a trying experience and I too have quite similar experiences when at the store as that post describes. I wander around knowing I'm there for a reason but it just won't break through. Or I stare at the stuff that's for sale with no real comprehension of what I'm looking at. Just recently I went toy shopping for a friend's daughter birthday that's coming up and everything looked the same to me. I just couldn't tell the difference between the (obvious to everyone else) assortment of toys. Finally my husband stepped in when he saw me staring vacantly and saved the day. I do remember telling the doctor that when I first started taking Sprycel that I felt confused and couldn't remember jack diddly, but now it's quite obvious to me that this side effect is probably not going away on it's own. And, unfortunately, there's not much that can be done about it. So please be patient with us CML survivors as we muddle through our days trying to figure out exactly what it is we were supposed to do in the first place. That's it for now. Over and out!