Okay I'm back again everyone! I just got off the phone with my cousin who is excellent at motivation. I feel like I should really throw more content into this web page and really make something out of it. I'm still trying to figure out what that is and the process is slow and laborious. If you check around the site and notice the changes I have made thus far you'll notice I'm shifting the site into more of a CML support page for people looking for solid information. I also want to create a space for people to get together and talk about living with CML. At least for me it's sometimes difficult to go through life now carrying this chronic illness around like a devil on my back. And I figure if I feel this way others must too. It's just a matter of putting in the work to get this site situated in such a way as to facilitate that concept. I'm also very interested in what other's are doing out there and would be very interested in giving lecutures at other support functions or on TV or something like that. So if anyone out there is reading this please get in touch with me under the Contact tab of you or someone you know would need a speaker! I may also be building a new business related site. But that's not out of infancy yet and may not come to fruition. But I will sure keep you posted if and when that happens! I've been home now for almost two weeks with my bum back and I really need to consider taking matters into my own hands and doing what I really want to in life. I'm not having much fun playing by the rules anymore. : ) I was watching Tabatha Takes Over on Bravo! and I thought to myself "I basically do that already and HAVE been doing that for years! If she got a TV show doing it then I can make a business out of this too!" So if that idea comes around the bend again I'll start to formulate that business model in the next few months. I've constantly told my bosses and coworkers that there are better ways of doing things if we can just step back, figure out a long term solution, fix what's wrong now, and implement everything to make a more profitable and fulfilling working environment. It's high time I start getting paid for my analytic brain. Anyway, if anyone else is in the New Jersey area and interested in talking about starting this up, use the Contact tab and let's get the ball rolling! That's all for now everyone! Over and out.
Okay everyone! Sorry I've been so quiet the last few days, weeks, months...I'm losing track of time! I've been quite busy lately with all the family stuff going on. I spent Easter with my partner's family in West Milford, New Jersey. It was nice but seeing as I get so tired so quickly I was pretty spaced out by the end of the night. I also attended my new cousin's Christening this weekend. That was also quite lovely and it was nice to be with my family during a happy occasion rather than a tradgedy. In my technological world at home I suspect my GPU on my tower computer is starting to go bad. I've been playing Fallout 3 in order to complete the game and delete it from my computer but the program keeps crashing to the desktop. However, it seems that recently the GPU is crashing the computer with fatal errors and forcing the computer to reboot. And today the game crashed, the screen went black, and I had to manually restart the tower. Needless to say I think the GPU is really starting to go bad now. I'll have to start pricing a new unit. I really need a whole new computer but that's going to have to wait until I start making money off the Internet. :) I see a few people are stopping by this site and I apologize for not giving you new content to look at recently. Shame on me and my lazy habits and my propensity to want to play computer games all the time!
On the medical front I also have another reason for not being on this site to update it. Last week I had to go see an orthopedic doctor about my back. I woke up with this horrific pain in my lower back that traveled right down my left leg. The awful, burning pain seems to have subsided with the help of some happiness inducing pain killers, but my leg and back still hurt a bit and my leg is now kind of numb and heavy. I'm out of work AGAIN for what appears to be about 2 weeks now. It's really ridiculous how much time I'm spending home it seems. I did get some sunshine being that the weather is nice enough here in beautiful New Jersey. Although today it's raining like a son of a bitch. Just as well; my beautiful flowers need the water. Anyway I have a back problem, leukemia, AND glaucoma for now. Any guesses as to what else is going to go wrong with me? I'd also love to hear from you guys! Be sure to visit the contact page for ways to get in touch with me. Stories about your leukemia or other chronic health problems are always appreciated. How you coped, what you felt, how you're managing your disease now...anything you want to write about I'm willing to read and share here. I'll obviously change or omit names seeing how the Internet can come and bite us chronically ill patients in the butt. I will tell you all I see my oncologist on June 4th so I'll be sure to post my results with you all. Keep your fingers crossed! That's all for now. Over and out. |